Please Join Us!
Delegates Dining Room
At the United Nations
2018 MIRACLE MAKERS
BREAKFAST
Children Shouldn't Have to Die
Because of Where They are Born
RACF's 2018 MIRACLE MAKERS BREAKFAST
IS NOT A FUNDRAISING EVENT
The Russian American Children's Foundation
Host Committee Invites

You
to the
2018 Miracle Makers Breakfast
Thursday, October 25, 2018
8:30 am - 10:00 am
Delegates Dining Room
at the United Nations
Visitor's Entrance, 1st Avenue,
between 45th and 46th Streets
New York, NY 10017
Children from Russia with rare, often deadly, diseases
have no one to turn to for help. Meet the miracle
makers who have changed these children's lives
through groundbreaking American medical care.

Complimentary Breakfast will Be Provided
Registration Closes In...
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The Russian American Children's Foundation
2018 Host Committee 
Matt Campo, President, Ronald McDonald House of Long Island
Dr. Natalia Belova, Global Medical System Clinics & Hospitals 
Dr. William Novick, Founder, William Novick Global Cardiac Alliance
Dr. Joseph Roberson, CEO, California Ear Institute
Tracy Scandlyn, Executive Director, Let Them Hear Foundation
Joe Torregrossa, Corporate Color
Kaya Yurieff, CNN Money
Helen Strilec Schatiloff, New York City Ballet, Corcoran Group
George and Jean Schatiloff
Natalie Sabelnik, President, Congress of Russian Americans
Elena Branson, President, Russian Center, New York
Katya Lukianov, Co-Founder, PaTRAM Institute
Alexander Milas, Executive Director, PaTRAM Institute
Olga Zatsepina, President, 
Russian American Cultural Heritage Center
Regina Vakser, McBreen and Kopko
Dr. Constantine and Natalia Kashnikow, Medical Director, 
Catheterization Lab, Saint Barnabas Medical Center
Katherine Schidlovsky
Xenia Woyevodsky, President, Tolstoy Education Foundation
George and Katherine Lukin, Capital Builders Group
Tatiana Sarandinaki-Kadaria, Board Member, 
Russian Children's Welfare Society
Larissa and Nikolai Pokrovsky, Managing Partners, 
International Services & Advisors, Inc.
Natasha V. Konon, ESQ., Chief Scoutmaster, St. George Pathfinders
Nick Buick, Executive Director, 
Russian American Community Services
Kendall Coffey, ESQ., Podari.Life
Gregorii and Elizabeth Galitzine
Nicolas and Rasa Mokhoff
Tatiana Geringer, Rus Management
Dimitry and Mary Schidlovsky
Andrei Bogolubov, Hook Life


The Russian American Children’s Foundation (RACF), founded in 2012 as Rusfond USA, is a U.S. based children's charity that helps Russian children with rare diseases before it's too late. Rare diseases affect a small percentage of the population making treatment options very limited, especially in Russia. About 30% of children with rare diseases die before the age of five. RACF saves these children’s lives by providing the advanced medical care they need. Children who would be disabled, now function as other typically developing boys and girls. Children facing death now live. Families are forever grateful because their children have new lives through RACF’s life changing and lifesaving programs.
A Whole New Sound 
Microtia is a rare birth defect, which causes a child to be born with a small, malformed, or missing ear. Only one out of 10,000 babies is born with this condition. RACF works with the California Ear Institute to help Russian children born without ears. American surgeons use advanced surgical techniques to create an ear where there wasn’t one and, more importantly, to give a child the gift of hearing.
A Heart of Gold

Heart defects are the number one killer among all birth defects worldwide. Newborn babies with complex heart defects present the biggest challenge even in the U.S. It’s critical that these little Russian babies get help within the first two weeks of life or it will be too late for them. There just isn't any way to bring them to the U.S. for lifesaving open-heart surgery in time. RACF has developed a dynamic new plan to provide groundbreaking American medical care to these babies right where they live. As a result, many more children with rare, life-threatening heart defects will receive complex open-heart surgery.
A Ray of Hope

In 2012, the Russian government officially adopted the term “rare diseases” for the first time. Starting in 2013, the government began to provide funding for the treatment of 24 of these diagnoses. Retinoblastoma, for example, is a rare cancer that starts in the retina, at the back of the eye. It is usually diagnosed before a child reaches the age of 3. Although it is the most common type of eye cancer in children, retinoblastoma occurs in only 1 of every 20,000 births. If the tumor is contained within the eye, more than 95 percent of treated patients can be cured.
Miracle Making Missions

RACF partners with experts in healthcare to send U.S. trained medical teams to parts of Russia where children are still dying from rare, but highly treatable, heart defects. Working with established hospitals and cardiac centers in Russia, RACF helps identify children who need lifesaving surgeries and provides the procedures free of charge. Through this work, RACF is able to give children the quality of life they deserve and would not have without these surgeries.
A Helping Hand

RACF achieves success in helping children with rare forms of cancer, complex heart defects, bone abnormalities in spines and legs and other rare diseases by providing American medical care before it's too late. Children should not have to die because of where they are born. Waiting for fundraising campaigns, for donations of airline miles so they can fly to the U.S., or for better relations between Russia and America is not an option for these children. Without emergency funds, some of these children will become disabled for the rest of their lives or die.

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